Friday, 15 April 2016

Living My Life

Sometimes living my life is hard and others not at all. Well I'm glad I have some meds to help me stay awake during the day, but deep down in my heart I know I still have Narcolepsy. 

But when me or my mom comes across another child out there with Narcolepsy my life suddenly changes because I know that there aren't many kids out there with Narcolepsy and it brightens up my day. 

Another thing about Narcolepsy is it sometimes comes with Cataplexy which is a symptom of Narcolepsy. That is a little bit hard to deal with but I seam to manage. Having Cataplexy really limits dangerous things, but luckily I don't really do stuff like that.

If any of you out their in the world have Narcolepsy and feel the same way, you can be sure someone else does too. 

When I wake up in the mornings, sometimes I think about if we're going to meet another kid with Narcolepsy and some days I'm totally focussed on what I'm doing. I guess some days are luckier than others.

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