Being sleepy

Being sleepy is no fun for me.  To other people that don't have N they might think sleeping is fun.

Sleeping get's in the way of my day.   I have to sleep during 2 break at recess while all my friends are playing outside.   When it's a weekend I have to sleep at home and have 2 naps when I usualy have 1 nap at school and 1 at home.  It makes it had to remember my naps.

If I don't get a nap my tummy starts to hurt, I fight with myself to stay up, and I am tired.

I sometimes play a game and it's close to my nap time.  But I play because I want to.   But when I start to get tired my sleep get's in the way but I know what  will happen so I go to sleep.

As you can see being sleepy is no fun for me.

Lifestyle changes that help

Going to bed at the same time every night and getting up in the morning at the same time every day

Taking short naps every 4 hours

Exercise every day

Eat nutritious food

Don't eat carbs early in the day

Take your meds as prescribed

Get fresh air every day

Surround yourself with people who understand and are helpful

Be kind to yourself.  If you need a sleep day take it

Pill times

I take 2 big pills and 1 small pill if I need it.  I take my first at 8:00.  I take my second pill at school.   I take my last pill at 4:00 or 5:00 if I need it

I feel awake.

I feel active.

I take my first pill at 8:00 because it wakes me up for school.  It helps me get through the morning. 

I take my second pill at school because I wouldn't want my mom and dad coming to pick me up for my pill or they coming with the pill.  

I take my last pill at 4:00 or 5:00 but if I don't need it I don't take it.  I just take it when I need it.

Narcolepsy walk

We do a 5k walk for Narcolepsy every year.  We raise money for Narcolepsy to see if they can find a cure.  

It's in June or July.  Finding a cure means a lot for people with Narcolepsy.  We bring a stroller for me just incase if I get tired from walking. I walk for 2-3k then I get tired.   

My friends come to the walk if their available.   

Narcolepsy quotes

These are some quotes and pictures that support Narcolepsy.

A nap is only a luxury when it isn't a necessity. Everytime  you find humour in a difficult situation, you win.  Friendship is born the moment someone says : what ?  You too?: .   There's : a nap : for that.  Life has many chapters.  One bad one doesn't mean it's over.