Tuesday, 18 March 2014

What Narcolepsy is like for me

I'm a kid.  I've had Narcolepsy with Cataplexy for three years.  I got it when I was 5.  Even though there's a lot of info on N out there it doesn't mean a lot to me.  All I know about N is what I feel.

I feel wobbly.
I feel tired.
I feel like it's hard to think.
I feel like I miss out on a lot.
I feel sick if I don't have naps.


I'm lucky that I have a mother & father who take good care of me.  They keep me safe when I'm wobbly.  They get me to take a nap when I'm tired.  They give me my medicine all day long and they stay with me when I feel sick. 
 
At school I take a nap.  Sometimes I'm so tired I can't think and my EA takes me for a walk to wake up.  I really like school but some days I'm feeling too sick to go. 
I also take a pill right after I get up from my nap.  

 

1 comment:

  1. It would be a dream come true if I could get rid of N and C. It would be awesome. I would be free from N and C.

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